Sunday, March 4, 2018

Hormone Replacement Therapy

Well hello everyone! I promise I haven't forgotten about this blog, I've just been rather absent from writing lately. I've actually been really feeling under the weather, and am only starting to feel a little bit more like myself in the last few days.

So, if any of you have been following my blog, you would know that I had some extensive hormone testing back in October. It was just a check in with my endocrinologist, and the results were posted in my last blog. Th results of my hormone testing showed that my pituitary and hypothalamus don't properly communicate with one another... although both parts of my brain technically "work." Both my endocrinologist and another specialist that I saw in January both think that Herman (my brain tumour) is intercepting all the important intel that is supposed to freely run between the two parts of the brain.

I also had MORE hormone testing (because, who doesn't love getting blood work done), which had some concerning results. My estrogen is pretty much in the toilet, almost to the point where it wasn't registering on the charts. My progesterone levels were also pretty stagnant, which means that my body isn't ovulating properly.


Overall, my body is confused and not functioning properly in terms of hormones. My levels are VERY low, which does unfortunately coincide with my diagnosis of hypopituitarism. My endocrinologist highly recommended that I start hormone replacement therapy, to help my body function the way it should.

Now, let me tell you... I was NOT overly thrilled about this idea. There is inconclusive research that shows tumour growth can be exacerbated by times the body creates more hormones (such as puberty and pregnancy) and I was concerned that starting these medications would mess with the tumour issues I already have. However, my physician reassured me that she did her own research, and concluded that the risks of me NOT being on hormones far exceeded me being on them (let me remind you, my docs believe I will be fully osteoperotic by the time I'm 40 based off my crummy hormones).

SOOOO... I have started the hormone replacement therapy and man, does it SUCK. I get to wear a little patch (pictured below) and I change it every 3 days. The side effects have been very undesirable. Ladies, think about how much PMS sucks (and men, if you're still reading think about your ladies and how they are when they're PMS'ing...) Now, I've had persistent PMS symptoms for well over 3 weeks now. Really sore boobs, bloating to the point I look pregnant, back pain, hot flashes, an increase in the severity of my headaches and skin irritation to where the patch has been applied. It's kinda hell. Oh, and I also cried when I dropped a peanut butter cup because my mood swings are as unstable as Brad Pitt and Angelina Jolie's relationship.

I've spent some time feeling sorry for myself, and I think that's okay. I'm frustrated. I'm uncomfortable. I'm in pain. I don't want this. I don't want any of it. But unfortunately, it's something that I have to deal with. I was pouting in the car and my boyfriend asked me,

"Would you rather have all these symptoms, or have bones so brittle you can't do anything?"

And I immediately answered,


I don't get that option though, so I need to deal with the cards that I have been dealt. It could be worse, but I also have to be kind to myself and remember that I am allowed to grieve the fact that this diagnosis kinda sucks.

Anyways, I have been in contact with my endocrinologist to see if I could be placed on a lower hormone dose, just because they did place me on the highest one possible... so here's hoping they can help me out!

Go forth and conquer your day friends, you can get over any obstacle put in your way!

- Court

1 comment:

  1. Well, courtney, you know me. I had to read to the end. I thought I might miss something. So you have two choices...both bad. Did they consider starting hormones at a low level? Or do I not know what I'm talking about! Is there a possibility that your body may talk to itself and get used to the hormones? All the best in this journey.