Never heard of the Alberta Tumour Foundation?! Well no fear, because I am here to tell you ALL about it! Myself, along with some other extremely incredible board members have created a not-for-profit organization in Alberta to support those living with Neurofibromatosis. Our goal is to provide support, awareness and advocacy to EVERYONE in Alberta, regardless of how NF has impacted their lives. Each individual on the board of directors has in some way or another been impacted by this condition, and we all have a deep desire to bring more education and light to the world of NF.
On November 12 we made our bid debut as a group, and I am still in shock at the level of support the community gave us. We hosted a dance/social in Calgary, and had a silent auction, snacks, a bar and some pretty great laughs out on the dance floor (Scott, I contemplated posting your Gangman Style routine here!). I know this is the first time I've posted a thank you, and I've been holding off because I am still trying to process the incredible success we encountered that weekend.
With the help of each person who bought a ticket, donated or purchased silent auction items, had some beverages at the bar and/or donated money out of the kindness of their hearts... you helped us raise over $7,800. Thank you, thank you, THANK YOU!
Now, you all might be wondering what we might be doing with this money... and I am going to tell you!!! Each of us on the board of directors feel that social networking, bonding, and creating new relationships are extremely important concepts in the world of NF. I know I can speak for myself, that I used to think I was the only one living with this condition. I felt utterly, and completely alone. But you know what... I never was. There is an entire community out there of people living with NF, and once I immersed myself in that world, I started to flourish. We all deserve to feel like we're supported, and that is what ABTF wants to do!
Right now we are in the process of planning another social event for next year, and at some point we've talked about hosting an educational symposium. We want to get medical professionals involved in our group, which we subsequently hope will bring more awareness into the health care system.
There is so much we want to do with our group, and we are just starting out! The prospects of where this group can go is absolutely overwhelming! Be patient with us, as we are all learning what works and what does not work, but we do promise some awesome things coming your way in the years to come!
We are currently working on our website, but PLEASE make sure to check it out! And let us know what you think the NF community needs here in Alberta!